Archive for the 'Uncategorized' Category

Sibling’s Love

We’ve been blessed by having Diego in our lives, but we’ve also been equally blessed by having his sister Sofia.  She is an 8 years old girl with a wonderful heart, the most amazing imagination and creativity, and with a pure love for her brother.  For us it is very important that she understands her brother’s condition and that our everyday life is different.  In this regard she is incredibly mature, and even help us in our everyday activities with him.  We are fortunate that they like to play and laugh together as Sofia verbally expresses and as Diego spelled for her in the following messages:

 

Happy Sofia,

Easy afternoon laughing with you. Xtra nice, silly, easy day. Easy to be myself with you. Really luv u. You’re so fun. I am laughing and really wish I could make Autism go away to speak to you. Really, Miss Gal (Adriana) really helps me have my so many messages so I can speak to you. I have so much to say. I once have fear of being incapable of communication. Now I can have a voice; a very smart voice. Early on I made mistakes. Early on I gave up. But now I havIMG_5317e a real magical writing many stories. I am so much calmer in my nice mind. Amazing and incredible. Easy to make so many stories. Gaming makes me more creative. Nice laughing with u. Gaming with u always makes me interesting inspiration. Kind Sofia, easy to make me laugh. I make stories for u. Never in my real special life have I met some nice “amiga” like you. I luv u. I can make real magic with u.

I believe we are magical laughing friends, and u entertain me. All the silly Autism laughing never gets old. Happy I am your brother. Can we play some new games? I’m so keeping my laughing.

Nice early day gaming. You are so nice. I am laughing at all the silly times with you. I am so laughing in my head.

Need my soul sister in my room. I am so happy laughing with you. Are you so happy too? Sofia I luv u so much. Easy to luv u. U r so imaginative. I work so hard so I can master easy communication. Extra interested in mind. Oh am so xtra autistic.  So glad u r so intelligent and accepting. U r so awesome. U r intelligent and kind. Gave me so much more amazing memories than I could imagine.

 

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Potty Puzzle

Those who are parent will agree that potty training is not an easy task, so imagine the added challenge when you are teaching this to a child with Autism.  The other day I started (once again), potty training with my middle son, who is now 6 years old.  My plan was to focus first on staying seated, and then emphasize more on the actual peeing.

The first time was very difficult because he didn’t want to enter the bathroom.  So much time has passed since our last attempt that I think he had just forgotten about the whole routine.  I had to carry him all the way to the toilet.  Finally I got him inside the bathroom but then he didn’t want to sit on the toilet.  I have to use one of my self-developed body restrain techniques to be able to keep him seated.  When you have a child with Autism, you have to learn untraditional ways to hold, carry, and restrain him, for two main reasons: to avoid hurting him and to avoid getting hurt yourself.

I remember one day while waiting in a doctor’s office, there was this kid making it difficult for his mother. He was behaving so badly, that his mother toke him outside the office and for some reason into the bathroom.  Understanding her situation, my wife went to her and found her all bitten and crying desperately.  She offered her my help, to which I agreed when the situation was explained to me.  When I got to the bathroom, I found the boy on the floor and the mother crying and unable to calm or just take him out.  I then introduce myself to the women and began the task of grabbing the boy with my (once again), self-developed body restrain techniques.  I did receive a slap in my face at the beginning of the process, but I manage to hold him in a secure way for both of us and take him all the way to their car in the parking lot.  When it was all over, the women ask me “thanks, where did you learn to do that”, to which I replied, “a lot of practice with my own son, don’t worry”.

It is true; nobody teaches you how to deal everyday tasks with a Son with Autism. You have to live them in order to open you mind to the learning process.  For example; how difficult could it be to get a haircut, after all you just have to sit there and let another one do the working.  Well, don’t underestimate the task no matter how ordinary or simple it may seem.  Let’s analyze it for a moment from an Autistic perspective.  First I have to go to an unfamiliar place, to sit with a bunch of strangers and wait until I’m called.  Then when they finally call me, I have to sit on a chair that moves freely to the sides and make me feel unstable.  I can be very sensitive when it comes to stand or sit in a steady place.  In my case I’m fortunate that my father sits on the chair and I sit on his lap so I can feel more secure.  Then a stranger approaches to me with scissors, which I know can cut me, or with some kind of machine that produces an annoying vibrating sound.  If that isn’t enough, the stranger start cutting my hair, which in case you don’t know, I can be so hypersensitive that even cutting my hair can hurt me.  Can you imagine that? They can even feel when their hair is being cut? Even for me, his dad, it is still difficult to understand.  So as I said before, you have to live these moments to learn about the everyday task with an Autistic Son.

Back to the potty training, I got to the most difficult part.  He is in the bathroom, seated in the toilet but, how do I make him pee in the toilet? Well, I don’t know the answer to that yet, but I do know what I’ve tried so far.  The routine of every 30 minutes, waiting until he just can hold it any more, modeling myself; I think I’ve tried them all.  With little success so far, but I have faith in him and his ability to learn.  He has shown that, many times and I know it’s just a matter of time before he masters this new task that’s been given to him.